USHER Austria Patient Symposium 2026
Hear the leading experts from ERN-Eye Network!
Where are we now: Updates on Inherited Retinal Diseases – RP, Usher and more
Date and time: 3rd October 2026, 13:30 -16:30 Vienna time
Location: Palais Liechtenstein, Fürstengasse 1, 1090 Vienna (Google Maps)
Audience: People living with Inherited Retinal Diseases: Austrian patients/family/patient representatives/members of the community/representatives of associations and support groups for the blind and visually impaired
Language: English, Wrap-Up in German
Organiser: Dominique Sturz, Usher Initiative Austria, ERN-Eye ePAG Chair
We are almost fully booked, a limited number of registrations can still be accepted
Programme - Session titles refined in collaboration with the speakers.12:30-13:25: Coffee and Registration13:30-13:40: Dominique Sturz and Hans Horak, Vienna: Welcome and Introduction
13:45-14:00: Hélène Dollfus, Strasbourg: The Role of ERN-Eye, Where Are We Now
14:05-14:20: Bart Leroy, Ghent: USH2A and Beyond - Current Developments
14:25-14:40: Francesca Simonelli, Naples: Preliminary Results of LUCE-1 for USH1b
14:45-15:00: Katharina Stingl, Tuebingen: *RPE65 and Relevant Clinical Trials in IRDs in Germany
(English/German)
15:05-15:20: Isabelle Audo, Paris: Gene-Agnostic Therapeutic Approaches
15:25-15:40: Markus Ritter, Vienna: The Austrian Patient Cohort and What to Expect for Patients in Austria (English/German)
15:45-16:00: Avril Daly, Dublin: The Role of Retina International
16:05-16:20: Dominique Sturz, Vienna: The Role of Patients in the Network and Beyond - A Patient Perspective and Wrap-Up16:30: End of Symposium
Usher Initiative Austria - Family Group, by families for families with Usher SyndromeInforms and empowers Usher families, based on reliable information & collective experience, and connects them to leading national and international expertsAdvocates for better care and early genetic diagnosis through an interdisciplinary approach Eye/ENT/GeneticsDelivers reliable and up to date information about the latest international science & research and supports & informs research and political decision makersCollaborates with relevant patient (umbrella) organisations and stakeholders at national & international level and advocates for a comprehensive rare disease policy strategy including interopabel RD registries and sustainability of ERNs e.g. with EU institutionsStay connected and join the mailing list by writing to [email protected]
Impressum: Dominique Sturz, [email protected]© Sturz-Trauma, www.sturz-trauma.at