USHER Austria Patient Symposium 2026

Hear the leading experts from ERN-Eye Network!
Where are we now: Updates on Inherited Retinal Diseases – RP, Usher and more

Date: 3rd October 2026, 13:30 -16:30 CEST
Location: Palais Liechtenstein, Fürstengasse 1, 1090 Vienna (Google Maps)
Audience: People living with Inherited Retinal Diseases: Austrian patients/family/patient representatives/members of the community
Language: English, Wrap-Up in German
Organiser: Dominique Sturz, Usher Initiative Austria, ERN-Eye ePAG Chair
Confirmed Speakers:
Hélène Dollfus, Strasbourg
Bart Leroy, Ghent
Francesca Simonelli, Naples
Katharina Stingl, Tuebingen
Isabelle Audo, Paris
Markus Ritter, Vienna
Avril Daly, Dublin
Dominique Sturz, Vienna

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Draft Programme - Session titles are stil being refined in collaboration with the speakers.Hélène Dollfus, Strasbourg: The Role of ERN-Eye, Where Are We Now
Bart Leroy, Ghent: USH2A and Beyond - Current Developments
Francesca Simonelli, Naples: Preliminary Results of LUCE-1 for USH1b
Katharina Stingl, Tuebingen: RPE65 and Relevant Clinical Trials in IRDs in Germany
Isabelle Audo, Paris: Gene-Agnostic Therapeutic Approaches
Markus Ritter, Vienna: What to Expect for Patients in Austria
Avril Daly, Dublin: The Role of Retina International
Dominique Sturz, Vienna: The Role of Patients and the Network - A Patient Perspective and Wrap-UpDetails to follow soon.

Usher Initiative Austria - Family Group, by families for families with Usher Syndrome• Informs and empowers Usher families, based on reliable information & collective experience, and connects them to leading national and international experts; advocates for better care and early genetic diagnosis through an interdisciplinary approach Eye/ENT/Genetics; delivers reliable and up to date information about the latest international science & research and supports & informs research and political decision makers;• Collaborates with relevant patient (umbrella) organisations and stakeholders at national & international level and advocates for a comprehensive rare disease policy strategy including interopabel RD registries and sustainability of ERNs e.g. with EU institutions• Stay connected and join the mailing list by writing to [email protected]

Impressum: Dominique Sturz, [email protected]© Sturz-Trauma, www.sturz-trauma.at